Browsing all posts in "Alzheimers".

Jun 25th
Friday

*a repost from a time I can’t seem to forget

This morning, the highway was filled with a multitude of disembodied headlights, each one searching through a seemingly inexhaustible mist, an optical illusion a bit tough to handle at 6AM when you’re still sleeping.
I made it onto the train and stared out the window at the relentless sheets of rain.
The dark and rainy skies made me think of a night many years ago when I went to my parent’s house after a slew of frantic phone calls from my mother.
She would freak out on a fairly regular basis back then.
At the time, she was in the late beginning stages of Alzheimer’s and I was still in total denial.
I pulled into the driveway and saw her silhouette standing in the open doorway.
I remember thinking she looked peaceful standing there
and not the frantic woman I’d just spoken to on the phone.

I called her name.

“Mom?”

No response.
As I walked up the stairs, I could see her staring off into the distance, detached and trance-like.
I stood next to her to try and see what she was looking at when she said,
“Look. There’s million’s of them.”

“Millions of what, Mom?” I asked.

“Stars,” she said, “Can’t you see them?”

In the front yard there was an old oak tree, the leaves still dripping from the heavy rain.
Behind the oak, I could see the front porch light from the Jacobson’s house
up on the hill illuminating the thousands of falling raindrops.
Stars, I thought, it’s raining stars.
I took off my glasses to see the world, if only for a moment, through my mother’s eyes.
A simple oak tree was being transformed into an impressionistic masterpiece right in front of me, thanks to a few misfiring neurons located somewhere in my mother’s brain.

“It’s beautiful, Mom.” I said.

“Yes. It is…” She replied.

I didn’t realize it at the time but the raindrops falling from the tree closely echoed the neurological avenue my mother was currently traveling down.
The drops of rain falling and disappearing into the waiting earth were so much like her failing memory,
a collection of antiquated shooting stars ultimately destined to crash and burn, their celestial beauty gone all too soon.
As we stood silently on the porch, an internal cog clicked inside me.
It was a frightening moment of absolute realization.
My phase of denial had finally come to an end.

~m

Apr 19th
Monday

Some thoughts from many years ago (2006)
Seems like yesterday . . .

We had my father over for Easter dinner on Sunday.
My sister wanted to pick him up and bring him over; something I believe she had to do.
I think she fears there won’t be many more left to share.
Sadly, I would have to agree.
Actually, I would have agreed over a year ago.
I have to give her credit for going through the rigmarole of getting him ready,
seated safely in the car and bringing him over to our house.
I’ve been there, done that and bought the t-shirt.

My father has a difficult time walking these days reminding me more of Charlie Chaplin than the man I once called “Dad”.
It’s an unfortunate physical side effect of a brain at war with total neurological disintegration.
We eventually got him into my living room and plopped him down in my favorite chair:
one, because the chair is just so damn comfortable
and two, because when we finally let him go, it would be impossible for him to miss it.

We all sat down to eat and my sister and I filled his plate with ham,
green beans and Au gratin potatoes, all of which we cut up into pieces to make it easier for him to feed himself.
And feed himself he did.
He ate everything on the plate.
Either my cooking was really good that day or where he’s currently staying is really bad.
Whatever the case, it was wonderful to see him enjoy a meal.
He didn’t speak a word as he ate.

My wife caught him stabbing at an empty spot on his plate.
She gently rotated his plate to where the food was and he was none the wiser.
Mission Accomplished.

The rest of the afternoon went off without a hitch.

After eating, we ushered him back to my chair where he fell asleep; perhaps shuffling through his own little world of monochromatic movie screens and silent dreams . . .  a sleeping Charlie Chaplin.

We woke him an hour or so later and got him back into the car.
As I fastened his seat belt, I looked at him as he peered over the rims of his glasses and I said,
“No Boston Marathon for you tomorrow, young man.”

I’m sure he didn’t understand a word I said but knew enough to do a little chuckle and mutter, “Yeah”.

He plays the game so well most days so why the hell can’t I?

For me, the Easter cupboard was somewhat threadbare in terms of holiday revelations
and personal epiphanies but I did get to marvel over the way my Dad still gets through his days.
In many ways, he’s graceful in a way I may never be.
As long as his surreal movie keeps playing,
I’ll continue to watch him as he shuffles through his seemingly silent and black and white world,
just like Chaplin.

~m

Aug 13th
Thursday

Christ, breaking bread, communion, religion, Alzheimer's

Sarah and I went to visit my father yesterday to feed him lunch and sit with him for a while.
Lately, he’s been overly emotional for reasons I may never be privy to.
The minute he saw us, he broke down completely.
I feel terrible saying it but I’ve almost gotten used to it now.
I had to.
My empathy for him that once seemed to be an impossibility to avoid feeling
has now turned into an acceptance of sorts that boggles my mind.
He was in the rec room that overlooks the city waiting to be fed.
I wheeled him to his room where I know it’s quiet and had Sarah get his lunch.
He’s a finicky eater these days around everyone except my sister and me which makes total sense.
His diet is now 100% pureed making his meals look more like and artist’s palette than a meal.
I learned yesterday that spinach makes my father cry.
On his plate were potatoes, spinach and something that would resemble pasta and meatballs in the ‘baby food’ format.
20 years ago, the thought of drinking an Italian meal through a straw had never occurred to me.
My father’s daily nutritional needs are now thrown into a blender ala ‘Bass-O-Matic’.
And I wonder why he cries?
I can’t get away from the feeling that a small part of him is frightened.
Not of me or Sarah or Maureen or Pam and the kids but he seems almost Fear Factor scared.
My sister says he’s a tortured soul and I would have to agree.
There are so many things that run rampant through my mind as I feed him, spoonful by blessed spoonful . . .
(I’m looking at a rainbow hovering over Boston as I write this. Truth)

there was the day we brought my mother to assisted living and took my father back to our house for a BBQ.
That may have been one of the last times that I actually ‘had’ him.
He was making sense and I could talk to him and he could understand me.
He was profoundly sad about bidding farewell to his wife for two weeks but at least he still liked the taste of beer (something he’s since lost long ago)

Spoonful by blessed spoonful . . .

the soft, cool grass beneath my feet in the backyard as we played catch after he got home from work.
We never talked when we played catch but there was conversation that he and I understood.
Especially when he threw a ball with some mustard on it, smiling as I caught it.
That was my own personal field of dreams.

Spoonful by blessed spoonful . . .

the Christmas night I went to the facility he was staying in and found him in a self-induced sugar coma after polishing off an entire bag of Dove’s chocolates that someone had given him.
There were candy wrappers everywhere, discarded like wrapping paper on Christmas morning.
He seemed ready to do jumping jacks, for Christ’s sake

I keep praying for a rainbow in his future but he’s having one hell of a time seeing through the gauzy reality he’s currently living in.
I finish giving him lunch and to my surprise he’s eaten everything save for the Popeye spinach soup.
I’m happy because he has a belly full of food but he’s the farthest thing from a happy ending because he knows it’s time for me to go.
I kiss his forehead and say, “I love you, Dad,” to which he replies, “Yeah.”
Sarah and I walk to the door and she says, “Bye, Grampa.”
More Wally tears.
We walk down the corridor to the elevators in silence as I allow myself to cry a bit on the inside
wanting badly for the seemingly inconsequential goodbyes to finally end.
It’s then that I have an small epiphany; as I feed him lunch, he’s actually feeding me.
It’s a Communion of sorts between my father and I.
I change my mind then and there.
And all of a sudden I don’t want the goodbyes to end.

Apr 23rd
Thursday

My father’s dresser stood roughly 5′ high and was made of a dark striped mahogany.
The handles were brushed bronze and made an interesting ‘clink’ after drawer was opened.
The most interesting thing was an item sitting on top of it;
a cast iron piggy bank that weighed about 3 lbs. with a lock on the underside of the belly.
But the strangest thing was that it was painted blue which made no sense to me whatsoever.
Pigs were not blue.
There was a small felt-lined box that held his wristwatch, rings, spare change, assorted cufflinks and an old broken lighter that I assumed had been my cigar smoking grandfathers.
There was a picture of me and my sister Maureen and an old black and white TV kitty-cornered leaning against the wall.
All of this sat on an ivory colored doily of sorts.
Actually the laced doily may have originally been white but discolored with age,
I could never be quite sure.
Dad was an orderly man, maybe even a bit anal retentive when it came to his dresser.
The drawers in order: sox, underwear and t-shirts, cheeno’s and jeans, polos and sweatshirts and in the bottom draw there was an odd assortment of archaic and godforsaken film reels (8mm) that he would never see, pocket watches, old broken wristwatches, pencils, pens, gag gifts from various milestone birthdays, an empty bottle of holy water and a grass stained baseball or two.
Upon opening any drawer of the dresser the thing I remember most vividly was the obvious scent of the man.
Though I find it hard to describe, imagine fresh warm linen with a hint of a melancholy and long forgotten rainy day.
That was my Dad.
One thing that’s baffled me all these years was his wearing of boxer shorts.
Images of him standing in front of the bathroom mirror shaving wearing nothing but boxers, a white t-shirt and stretch black socks are seared in my mind forever.
I distinctly remember the day I cleaned out his dresser for the last time.
With the exception of his boxers and t-shirts, every drawer held a different memory of him.
In his bottom drawer I found a metal ‘bank’ box that contained old bank passbooks, faded photos of people I didn’t know and various documents he had been saving.
Underneath the pile I found a tie tack I’d made him when I was about 8 years old.
It was brushed silver and had a semi-polished jasper stone set in the middle.
I made it at the same time I’d made my mother’s ‘precious stone’ earrings (each earring weighed about 8oz)
Finding the tie clip wasn’t so much of an emotional thing for me.
He didn’t leave it there for me to find.
He just never threw things like that away.
Ever.
It was one more thing for me to learn about a man I would soon be losing.
The piggy bank is resting comfortably in my cellar right now in a box with all his stuff.
To this day I’m still wondering why the hell it was painted blue.
Maybe someday I’ll still be able to ask him . . .

Apr 20th
Monday

There are things that happen in our lives that simply defy explanation;
situational outcomes, a much needed phone call out of the blue, an errant email you ‘forgot’ to open that drastically changes some facet of your life.
Lately, my father’s journey has been something of an emotional rollercoaster ride.
In the span of one visit, he’ll laugh one minute to beat the band while the next he’s crying like a baby.
While it’s easy (and enjoyable) to watch and listen to him laugh, his tears and all too complete sorrow are a completely different animal.
Wax on, wax off.
He was never an emotional man to begin with so that takes some getting used to.
My sister and I have been truly baffled by the whole thing.
The last time my sister visited our mother’s grave, she had a brief ‘conversation’ with Ginny.
We both do the same thing when we visit her.
She told her about Dad’s current penchant for a psychological taste of a Six Flags amusement park.
She also told her that her ‘Wally’ is sad and misses her dearly.
One week later while Maureen was visiting our father she noticed a woman standing in the doorway of his room as she fed him lunch.
Her heart skipped a beat.
This woman looked like our mother.
Her eyes, her hair, her glasses, her sunny disposition were all subtle suggestions of ‘Ginny’.

“Hi, Wally!” she said, as she walked in and touched our father’s hand.

Maureen was a bit gobsmacked by the situation but she said our father seemed to enjoy this woman’s company.
He was smiling and laughing.
Her name is Margaret but they call her Peg.
And Peg seems to have a thing for Wally.
We were told that Peg and Walter can sometimes be found sitting together in the rec room that looks out over the city of Worcester.
It’s a wonderful view even on a grey and rainy day.
Peg even holds our father’s hand.
It’s uncanny that after my sister’s visit with our mother this woman should almost materialize out of thin air.
I’m thinking that as poor as my father’s eyesight is, every time he sees Peg, he’s also seeing our Mom.
Rollercoaster ride, explained.
Possibly.
In looking at the situation I’m so tempted to believe this woman was sent by my mother, a surreal gift of a love from someplace truly wonderful.
I know, it sounds way too Disney and formulaic but the situation defies explanation.
Maybe Peg was sent to help my father finally get home.
Perhaps she’ll remind him of the most important things missing in his life, make him close his eyes and dream good things.
Maybe she’ll give him the much needed solace he so richly deserves.
But for now, he shall remain a constant rider on these misshapen, parallel bars of cold steel.
He’s still holding on for dear life, lost on a perpetual track of fragmented emotions.
Destination?
Only God knows when and where the rollercoaster will ultimately arrive.
For the love of my father, I hope it arrives soon . . .

Jan 16th
Friday

I’ve been thinking lately about how disconnected I feel regarding my father.
He’s been in limbo for so long now that I almost forget how to love the man.
I write this knowing full well I run the risk of sounding cold and emotionally apathetic, which I am definitely not.
But how do you find a way to love someone that for all intents and purposes is no longer there?
I care for him, God, I do and will forever remain his most vocal of advocates to ensure he’s treated with the utmost respect and compassion.
I owe him that and so much more.
Three years ago, I would have had a very hard time letting him go.
Today, I’m not so sure.
I want this thing to be over with for him, maybe for my sister and me too.
I want him to ‘get there’.
I want him to feel peace, not chaos; sunlight, not rain; happiness not despair; warmth and not apathy.
Anymore.
It makes me sad to write these words but I mean them in the best and most tender way possible.
These thoughts are always hanging off the edge of some deep and internal precipice of mine, wanting to fall off into some godforsaken abyss and be gone.
But somehow, they remain.
Until now, perhaps.
Maybe I’m writing these words in the hopes that they remove the chains that keep me from getting as close to him as I feel I need to be, loving him deep within my heart and not just on the pages of Smoke and Mirrors.
I waited on an older gentleman the other day that reminded me of my father some ten years ago.
He wanted to buy some cigars for his son who was celebrating his 30th birthday.
I wanted to tell him how lucky he was, how fortunate his son was that his father was still in good health, how life can change in the blink of an eye.
Giving advice on life to a man that could have been my father just didn’t make any logical sense to me.
It’s almost tragic how many things there are in my life that I no longer take for granted these days.
Like someone I love remembering my birthday.
Yeah, in a perfect world . . .
This isn’t a ‘poor me’ scenario because I honestly don’t feel that way at all.
I just wanted to let someone know just how precious certain moments really are.
I didn’t do that.
And the days go by . . . .

Oct 27th
Monday

I’ve spent the past several days doing some much needed thinking and introspection
and although I’ve yet to glean anything remotely resembling an answer, I have realized a few things:
I spend far too much of my time doing what I ‘think’ I should be doing opposed to what my own reality dictates.
My all too patient wife has been a ‘blogging widow’ for far too long and that must change.
She’s given me 3+ years of virtually bitch free blogging, a bonus for anyone bitten by the bug.
She does feel that my time would be better spent writing and working on this book of mine that has somehow floated too far offshore for me to easily rescue it.
But rescue it I will. (Do I sound like Yoda?)
I am not, I repeat, not done blogging.
Far from it, if that’s what you may be thinking.
But I have realized that it’s time for me to spill some fresh ink on my farfetched dream of one day being a published writer.
I am treading water for reasons that no longer elude me.
I am afraid my writing will ultimately fail.
Not a strange fear, I guess.
It’s too easy not to fail when you stay within the confines of a blog where
the people that read care for you and your artistic feelings.
That’s not too say that most comments are fluff, they are definitely not.
I feel that my words reach deep inside many people and I am truly blessed in the way your thoughts come back to me, amazed sometimes.
Although I’m still not sure of this blog’s ultimate direction some days, I do know it’s overall integrity will benefit from me doing what I originally set out to do.
I sincerely thank all of you for your thoughts, prayers and comments this past week or so.
I’ve read every single one.
It’s time for me to stop treading water and start swimming . . .

~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~ ~

*On another note, several people have asked about my father since I haven’t mentioned him lately.
I went to see him this past Sunday after a phone call from my sister who happened to be visiting him.
Pamela and I found them both sitting outside the confines of the nursing home taking in the sun.
It was around lunchtime and my sister Moe suggested that we feed him lunch al fresco, that he might enjoy the change of scenery.
I agreed and went to retrieve his lunch which was warmly sitting somewhere on the third floor.
The warmth of the sun felt so good and so right, as I fed my father while Pamela, myself and my sister talked.
I was happy with not only the way he looked but the way he devoured his lunch.
With a nice big slice of coconut crème pie for dessert, I was secretly hoping he’d be too full to eat it.
He ate the entire piece, a small, good thing, I guess.
I can’t tell you how nice it was sitting there in the sunshine watching my father actually enjoy a meal.
Maybe he knew Maureen and I were there.
The saddest part is how infrequent my visits have become.
Working for a living sucks.
But I have promises to keep.
All three of us wheeled my father back to the prison inside and into his room on 3 North.
I gave my sister a hug and a kiss on the cheek and headed home to watch some of the Patriots game before getting supper started.
My sister was staying a bit longer to give Dad a shave.
Walter had a very nice Sunday.
Come to think of it, so did my sister, Pamela and I.
For those on my blogroll, I will be stopping by . . .

Sep 25th
Thursday

My father is stuck.
Although it’s unlike Winnie the Pooh in the Honey Tree
or even a tomcat that’s climbed too high into an archaic but majestic oak, those types of ‘stuck’ are manageable to a certain degree.
It’s like he’s an enigmatic and unsolvable crossword puzzle, a stalemate of stalemates, a real life version of Bill Murray in Groundhog’s Day where every day is the same.
And though I repeatedly tell myself that it doesn’t bother me, deep inside it does.
Every visit it’s the same old thing.
I sit and stare.
I tell him stories.
I tell him about the weather and what I had for lunch.
I tell him what I’m making for supper.
Almost like it really matters.
It’s sad when I can’t even fool myself anymore.
I swipe madly at this insidious and maddening cobweb that has my father’s mind and memories
in its grip, deliberately refusing to let go of him.
I was sitting the other day watching him go in and out of sleep like a short-circuiting light bulb, his eyes methodically opening and closing; wax on, wax off.
I softly said, “Dad, what are you waiting for?”
He muttered something incomprehensible and shut his eyes, tired of trying to solve the puzzle, tired of my questions, tired of this confusing life.
And I can’t blame him.
He’s endlessly moored to this drab room in a city nursing home with no knife to cut the ropes.
I’m starting to feel lost as well.
Lost to him and so very lost for me.
I feel guilty after asking him the question and retreat to my dark corner of the quiet boxing ring knowing he shouldn’t have to answer a query such as that.
This is about him and not about a too selfish ‘Michael’ and his all too busy life.
But how does it finally end for this sad and fragile man?
Please, dear God tell me. Will you?
If I’m supposedly being taught some kind of lesson here, I’m really losing my patience and these days nothing seems to make sense. Nothing.
So maybe God listens.
Maybe.
Once again, I close my eyes on another day and I think, maybe tomorrow.
Yeah, right, maybe tomorrow . . .

Apr 25th
Friday

My sister and I have noticed some changes in our father.
Whenever we talk to him about ‘old times’ (instead of just sitting there staring vacantly out the window) his eyes fill with tears. He’s not totally crying but something is definitely going on.
We wonder what’s really going through his mind?
It was this thought and some help from the band “Tears for Fears” that are responsible for the inspiration behind this post.
I didn’t plan on posting tonight but sometimes you just have to let some of your writing go.


the Size of Sorrow

Carbon-copy days
Stain my mimeographed life
Wondering if today is some strange and future tomorrow

Time meanders away
some perpetual 36-hour day
But what is the size of sorrow?

a Fool on the hill
a sad silhouette of your absence
what remains breaks the heart of the borrow

Tomorrow is near
like an invisible tear
I’m wondering what is the size of your sorrow?

~m

Mar 6th
Thursday


Pathological . . .
Lies will see the light of days
Someone knows the truth

~m