It used to be so easy years ago – this blogging thing.
Most people know this blog was my own personal bridge to an understanding of a disease that
has all but consumed the better part of the last 12 years of my life.
Writing used to be so easy, life was the hard part.
Now everything has changed.
The bridge is permanently closed and my journals have been painfully empty.
Empty can be a real painful place for a writer.
I write every day but much of what I write now is too personal and heavy for blog posts.
Many will say that the bridge never closes but for me, this one has.
My reasons for needing it in my life have changed.
I have changed.
My mind is currently like a dark grey and forbidding sky that appears to be swiftly moving yet
still appears the same.
Enigmatic, much like my grey matter.
I need to find a way to connect with my insides again.
The entrance was emotionally sutured in late March of this year.
So where do I go from here?
I’m really trying to find my way back in.
Or out.
Sorry for my absence, if you missed me.
I’m hoping you have.
I’m praying for a light to go on any day now.
And I’m thinking I’ll be alright.
But time will tell . . .

~m

There are several things I do know about my nocturnal comings and goings.
I dream in vivid color, for one thing.
Not just fundamental colors either.
My synapses and neurotransmitters treat me to a 4th of July palette of incredible and wondrous things.
My dreams are intensely complex, symbolically speaking, and I have yet to
understand what they truly mean.
I have also been known to get out of bed at 3:47AM to write down many a
soon-to-be elusive thought.
For the past ten years or so,
I have yet to have a dream that included both my mother and father.
It’s always been one or the other.
Given the circumstances surrounding the past chaotic decade,
that makes some logical sense, I guess.
As I said, my dreams have had ‘Ginny’ some nights and ‘Wally’ on the others.
Never together.
Until last night . . .

Off in the gossamer covered distance I could see them standing together,
holding hands . . .  smiling . . .  still.
They were underneath a tree of great age that was surrounded by what looked like
thousands of these tiny purple flowers.
I was physically moved (somehow) closer and I immediately noticed that they both looked happy,
healthy and totally at peace.
My mother was wearing a royal blue, knee length coat.
My father, a crisp white shirt and grey pleated trousers.
I smiled at the sight of the two of them, so obviously happy together and said,

“What are all these flowers?”

My mother smiled and said,

“They’re bluebells, Michael.  Each flower is a dream of ours that somehow came true.
No more sad, just more good.”

She turned (in slow motion) and kissed my father on the cheek.

They stood underneath the bluebell tree as small white flowers began falling like an unexpected springtime snowstorm.
They faded into the distance, transforming themselves into a Monet-like watercolour.
I faded into my dreamworld distance as well.

Before I went to bed last night, I had never heard of a flower called a ‘bluebell’.
I found it quite appropriate that the beautiful flower is not quite blue but purple – a color closely associated with Alzheimer’s Disease.
Thinking back on the dream I found it odd that my father never said a word,
though he appeared to be quite content.
Maybe the serenity I saw in his bright eyes told me all I needed to know.
I feel that their hearts have healed after all these godforsaken years apart.
Although mine is still on the mend,
I now believe that there are better days ahead for them
and for me . . .

*a little something from the wonders of the internet regarding ‘bluebells’

“Bluebells have long been symbolic of humility and gratitude. They are associated with constancy, gratitude and everlasting love. Bluebells are also closely linked to the realm of fairies and are sometimes referred to as “fairy thimbles.” To call fairies to a convention, the bluebells would be rung.

Bluebells are widely known as harebells in Scotland.
The name originated due to the hares that frequented the fields covered with harebells.
Some sources claim that witches turned themselves into hares to hide among the flowers.
Another name for bluebells is Dead Man’s bells.
This is due to the fact that fairies were believed to cast spells on those who dare to pick or damage the beautiful, delicate flowers. The people of Scotland are fond enough of the flower to continue this tradition
in the hopes of protecting the little flower.”

M

[photo courtesy of Kelly]

I’ve been mulling over in my mind the past several weeks wondering if I could
crystallize my many thoughts into one fine black point.
The little voice inside my head just said, “Are you really serious?”
Since the night I wrote ‘Boxes’ my world has changed dramatically.
On one level, there is this welcome sense of relief regarding the final end for my father and his long fought ordeal; another level acknowledges a deep sadness knowing and accepting the fact that he is truly gone.

I took a ride yesterday afternoon to North Cemetery where my mother and father are now buried.
It was unseasonably warm with a cobalt-blue sky, a Cape Cod-like sea breeze and enough
brilliant sunshine to make me start daydreaming about the summer months ahead.
This place where the earth now wraps its arms securely around my parents has become
hallowed ground for many reasons.
For me, it is a tangible point of communication, a visible portal to somewhere I’ve never been,
a place where special things happen and are accepted for all that they are.
It was no different yesterday as I stood staring at the rose granite bench bearing the names:
Virginia A. & Walter M.
Best friends, I thought.
The engravers had paid a visit and finished the stone.
The circle was now complete.
I was alone in the cemetery and sat down on the sun-warmed bench, stretching my legs out into the sunshine.
To my right was the small flag stuck in a holder that now marks my father as an American veteran.
I was sitting for less than a minute when the wind picked up.
The tiny flag began waving gently and touched my arm.
“Hey, Dad,” I said, smiling at the thought.
The flag continued to wave, touching my arm, my soul, my heart.
It was sitting there that I began to finally accept the finality of these past few weeks.
The stone was done, seeds were planted and tears rolled down my cheeks watering the dry earth below me.
As I stood up, the breeze ceased and the flag drooped down.
I kissed the palm of my hand and placed it on the warm rose granite bench that now held their names.
“You’re finally home, Dad,” I said to an empty cemetery.
I got in my truck and drove away a different man then when I originally came in and
for the first time in many years, something felt right.

~m

I wrote  ‘The Frozen Man’ after listening to this song from James Taylor.
The song subject is a bit different than that of my poem but I credit JT with
the creative kick and ultimate catalyst I needed to write those words for my father.
My daughter Hannah, read ‘The Frozen Man’ in the pouring rain last Monday morning at North Cemetery.
Amidst the silence, there was nary a dry eye under the tent, especially me.
I listened to this song on my Nano tonight and got a bit misty.
I remember the day it inspired me to write the original poem for my Dad.
My deepest thanks to Yvonne for making my words
look so damn beautiful in calligraphy
(they were on display at his wake, btw)
Remembering my Dad today, who is no longer the Frozen Man.
He is finally free and I am slowly moving on . . .

His soul sleeps,
buried far beneath a long forgotten vertical landscape,
yearning for home . . .
it dreams of places remembered; warm places, complete and innocently raw

The perpetual journey through a cobwebbed labyrinth remains a stygian quest at best,
an unanswered prayer, a dimly lit votive, a quiet cry in the dark
the clouds thicken, the earth cools and a winter of the mind settles in

Rolling waves of emotion yield snowflakes of blue
that fall like sleet, slicing the spirit into oh, so many unrecognizable pieces of what used to be a life; where nothing fits or belongs but must somehow remain

still . . .

Who knows when, this sadly shattered thing will end
Only God knows when it started,
But it’s wearing pretty thin, as the winter settles in, covering the frozen man . . .

ps. love you.
m&m

In the beginning,
[find]
the path of least resistance
[because]
God can forget too . . .

4~p

It’s like watching the slow and dying embers in the
backyard firepit on a sultry summer’s night.
In some ways I understand it, some I don’t.
Maybe it’s meant to be that way.
It’s hard enough to watch someone you love die but it’s the
‘dying marathon’ of Alzheimer’s that really hurts inside.
I had a deeply emotional visit with my father this past Sunday.
I felt this impending sense of detachment from him that I’ve never seen or felt before.
My sister says it’s that way with most patients in the final stretch of the endgame.
I am trying to make myself understand that.
Not doing too well with it either.
The past 5 years have been a sad and long goodbye and although I’ve said it before,
I want to believe in my heart that he is ready.
My father did not cry yesterday which had me scratching my freshly shaved noggin.
It was almost as if he was trying to be strong just for me,
but maybe I’ll never know.
I sat and held his thin and badly shaking hands and really looked at him,
into my father‘s eyes.
My heart was instantly shattered as a lifetime of tender and lost moments came crashing into my mind.
I want many things for my father and not one of them was in this room that has held him prisoner for the past 5+ years.
I want him to walk and feel the rays of the sun on his face again,
love and be loved in return, find the missing piece of the puzzle he’s been searching for since he got sick.
Find my mother.
I want him to find enough strength to finally fade away and find his corner of the sky,
his cerulean peace.
It’s time for my beautiful father to go home.
Because of all the places I roam, I miss having him there the most . . .

He stares blindly out the window of another night
down on Bleeker Street, where nothing seem to change except a world gone mad.
He exists.
I exist.
I go to him, touch his shoulder feeling the quivering bone underneath my hand
but he doesn’t move, nobody is home it seems.
As I bend to kiss his forehead,
I think back to my childhood remembering the smell of him;
a rich elixir of leather, spice and a fatherly scent I could never quite put my finger on.
It was a smell of  total comfort and one of extreme familiarity.
His scent is different tonight; he smells clinical, preserved and abandoned.
He smells like a familiar stranger, an ancient decade of melancholy memories,
echoes of voices lost in an obsidian mist . . .

I sit there with him as we both blindly stare out the window, watching a world gone by
and we sigh,
we cry,
we say goodbye to the too many words left unspoken,
the things we once took for granted,
and the once welcome spaces where we no longer belong.
I take his frail and shaking hand and wonder (as I have thousands of times before)
how many more nights will he sit here all alone and stare?
And simply exist.
There is little left to say but with my father, somehow that’s okay.
Somehow, I know he understands.
He has taught me well.
He was never big on words anyway.
It will be very hard to forget the nights down on Bleeker Street and even harder to forget
the little man just sitting staring out the window . . .

Off in a not too distant somewhere, I hear the shimmering sound of church bells.
Melancholy yet beautiful, their dissonance fills the night air with a longing, a void filled, 
an endless possibility.
Dark grey clouds move low across the sky saturated with change; change of the heart and mind,
soul and body, a chasm of repeating continuation.
The church bells chime on, sounding more and more like a movie soundtrack that once defined your life
as it echoes the pain,
loss of cerebral photographs, and confusion of all the simple things that mattered.
And yet, the sound is oddly comforting, a musical pall of earth tones beckoning pure white light.
I am suddenly aware of the clip-clop of my blackened dirty shoes on the pavement below,
an urban heartbeat, the intrinsic essence of time and space; of a time that
I listened for the sound of your footsteps, of a space holding everything you once were.
You.
My dear, drifting and lonely Father.
If you could only know what I want for you in the most loving of ways.
If you could only hear the beautiful church bells.
But the world will continue to hurt you until you find a way to finally listen.

Maybe it’s a sign of survival, of anguish,
of the frightening realization that mortality does exist in the deepest recesses of the mind.
Maybe it’s a sign that everything is still changing,
still in that near frozen state of flux . . .
For him, for me, for the four walls that still imprison him,
for a world that looks to him as confusing today as it did several hundred yesterdays ago.

Maybe it’s not a sign at all but a palpable gesture that while he sleeps,
this ravenous disease does not; it always wants more.
It replaces what it takes with something barely recognizable, something dark and foggy,
something you never want to talk about around the coffee table but remains forever.
Sometimes this thing just takes.
And takes . . .

Maybe it’s a sign that he is tired, fed up with playing the host,
sick of food that looks like pureed shit put through a strainer that he has to try and swallow.
Banana Crème Pie should never look like soup.
But it does.
And that’s a crying goddamn shame.
His mother was a pastry chef, Christ in a sidecar.

Maybe someday I will look back at this point in time and have a moment of revelation
but I’m not betting on it.
If this disease has taught me anything it’s not to get caught up in any kind of emotional gambit.
It’s a losing proposition at best.
So maybe it is a sign.

For my father maybe it’s a sign that simply says ‘stop’ . . .